Friday-test day

Okay so keep checking this post, I will add to the length as we get more results back...
First off...Dr. Doomsday is on today. Someone has been praying for him...and it shows. He was polite and actually somewhat positive. He said the EEG showed improvement (duh) but he wasn't specific and said that he doesn't have a written report back for it yet. I think they like to wait for the written portion because then they can not say anything that's not on the report...it's about butt covering.

Ollie is in MRI right now...his anaesthesiologist was a dad of a 5 month old himself and so compassionate and understanding of our concerns. He is using the minimal dose to put Ollie just under the night and not totally out. He was right aligned with us in wanting Ollie off of the air tubes. In fact, Ollies air got pulled..Dr. Doomsday ordered him off all air support, even the tube by his nose. But we know that with the MRI he will come back with the tube back under his nostrils...taped to his cheeks. If he does well this afternoon/evening, they will pull it again later. The anaesthesiologist said he should not have any lasting drowsiness from the MRI. It'll take him 10 minutes to wake up and he should have it out of his system within an hour. So PRAY for no oxygen/breathing set backs.

Ollie also got his mouth tube pulled this morning...since he couldn't have anything in his tummy for the MRI. His nurse knew I wanted the tube moved anyway...so once he's back from MRI we are going to do the tube down his nose to his belly so that his mouth is free to root and feed and have it's own willl.

Dr. Doomsday also specifically requested a verbal report from the MRI people so he could give us an idea of what we are looking at so we don't have to wait all weekend. He said we just have to agree we understand it's word of mouth and totally preliminary and what comes back in the written report may be very different. I can live with that. Ollie obviously still has goose eggs on his head so we are expecting some funky areas in the MRI scan. We are hoping and praying he is not having any current bleeds or anything that will require draining/surgery etc etc. What damage if any is already done, and we just want to progress and work with what we have.

Thanks for the support and prayers today. I did read emails this morning, haven't had time to respond. Probably won't until later tonight as I want to hold Ollie lots and reassure him so he doesn't have setbacks from all his testing these last two days. (Oh, he had another heart scan this morning too...no idea when those results come back...praying the thickening on his heart is going down.)

Love you all...gotta run back to my lil boy, he should be about done with MRI and I wanna be there for him.

(yes mama's I ate lunch with Will -yummy fish-and am drinking lots of water-and slept in til 9am...I'm well rested)

(((hugs to all)))