Grace is doing about the same today. I've been told that I can't hold her for another couple of days, which is very frustrating and hard for a mother. Greg will be arriving in a few hours and have a couple days off here. Grace's doctor is now trying to get her oxygen levels lower on the ventilator...feels like deja vu from 4 months ago! She is still under sedation. The C-DIF infection is also called colitis, and it's unknown whether she had it before she came into the hospital or not. It's being treated with antibiotics. I keep hoping I will wake up each morning and see a major change, but she is moving pretty slowly. Grace was never sick like this in the NICU, which is pretty amazing, but it's hard to see her like this now. All her old NICU nurses have been shocked to see her so sick, just because she was healthy (for a preemie) in the NICU, and fine when she went home just 6 weeks ago. We have been pretty careful with her, and she was going to get to go to church for the first time in the next couple weeks. After this, Grace will literally not be leaving the house until spring. We had no idea that her chronic lung disease could cause this many problems. Please be praying for Greg and my own health-that we don't get sick at all this winter, and also for my sanity in being stuck at home for months:) Any good books will be appreciated! I think we will be able to have visitors here and there, but anyone with children will probably have to wait, as they are exposed to so much sickness in schools. Grace is on more medication and has more lines in her than she ever had in the NICU-it shows me unusual her stay was the first 4 months-she really sailed through without experiencing the problems most preemies have. Some of the medication she is on now does have some pretty serious side effects, especially the nitric oxide and morphine. Please be praying that these meds can be weaned, as well as the ventilator, of course. Her doctor is named Dr. Black-he said this morning we will be here for at least another week from now. My mom was able to fly down from Washington on Thursday night and has been here all weekend-she will be flying back tomorrow. Thank you for your continued prayers and support!
And on another note: Ollie is well and growing like mad. He had his first experience with sitting in and playing with grass. I have some really cute pics, but no time to post argh!!! Later...I promise...cute fat baby eating grass and drooling. :P
No comments:
Post a Comment